All posts by Joan Reffner

How do I explain to my child that he has a disability?

Explaining a disability to a child is never an easy thing for parents. It is equally difficult for the child who may not understand the nature of their disability. There are some general guidelines parents can use to communicate to their child and help them prepare.

First, parents must try to fully explain that the disability is not the child’s fault. Parents must show solidarity with the child and convey their compassion and understanding of the challenges ahead. Children with disabilities must be given a full explanation of what their condition is, how it can be dealt with and the ways they can make progress in spite of it.

Parents should begin communication early, as soon as the child has become aware that they are different from other children. For children ages 2 to 4, parents need to explain that sometimes people are born different and don’t have everything their bodies require to function. It’s OK for parents of kids 5 to 8 to acknowledge the unfairness of the child’s condition and to remind them that there are other talents they have that are equally important. Kids ages 9 to 12 may be told that, while it’s natural to be frustrated with their disabilities, they can be strong in other ways, especially in coping with their disability.

It is also important that parents explain the disability to the child’s siblings so they have a clear understanding of what their brother or sister faces. Even children with no disabled siblings need lessons in compassion so they will be prepared when they meet disabled people and know to treat them equally.

Disabled Child , Tikvah Layeled

Tikvah Layeled Awareness Campaigns

Tikvah Layeled
5th International Medical Symposium Dead Sea, Israel 2012

It is the mission of Tikvah Layeled to raise awareness of the plight of children who suffer from cerebral palsy. Tikvah Layeled also leads efforts to provide therapy and loving support for the children in their care. To educate, raise awareness and to exchange the latest information on treatment, Tikvah Layeled regularly sponsors conferences and symposiums. At these meetings, leading medical authorities are invited to share their knowledge of the disorder so that the lives of Israel’s disabled children in can be improved.

Cerebral palsy is a disorder affecting the body’s central nervous system. CP develops either prenatally or as the result of a traumatic brain injury. Balance, coordination and motor skills are reduced and many of these children suffer from intellectual impairment as well. Tikvah Layeled’s awareness campaigns educate the public as they explore recent advances in care and treatment. Great progress has been made to help alleviate pain and to assist patients with muscle tension problems, and new advances exist just over the horizon.

By bringing the world’s leaders in research and treatment to Israel, Tikvah Layeled helps lower the need for families to travel abroad for treatment which can be expensive, time consuming and stressful. Advances in neurosurgery and orthopedics have done much to help these children, but more can be done in this ongoing effort and Tikvah Layeled remains committed to treatment, care, education and awareness.

 

Improving the Daily Life of a Person with a Disability

Of the 69.6 million families in the United States, more than 20 million have at least one family member with a disability. Whether it’s physical or mental, people with a disability often have a more difficult time adjusting to daily life. These suggestions will help enhance the quality of life for those with a disability:

  • Determine the person’s individual needs. A disability may range from blindness to mobility issues so it is important to address the specific needs for the type of disability that the person has. It is best to spend time with the individual and ask questions and talk to them. Also, speaking with a doctor or specialist will provide further information regarding care and medical treatment that the person needs. By gathering information and tailoring a care routine that is specific to the person, their environment will remain consistent and efficient.
  • Install devices or additions in the home. If the individual is unable to walk or move freely, it would be best to determine exactly what they need to assist with movement and have this installed in their environment. Whether it be handle bars or a ramp, these additions will ensure the safety of the person and provide convenience in their daily life. Also consider the temperature, smell and how much light enters the home as these factors can affect their feelings.
    Portable Ramp
  • Plan trips and outings. Sunshine and fresh air can be very beneficial to the well being of those with disabilities. Plan for outings to the local park or picnic or go for a walk. This will also enhance their social well-being and maintain social manners and interaction.
    Walking in the Park
  • Manage hobbies. Find out what they are interested in and provide the tools or means for them to work on their hobbies. Whether it be painting, writing, reading or exercising, doing these activities on a regular basis will keep the mind sharp.

It is not hard to enhance a disabled person’s life by making daily tasks more comfortable and successful. Whether they are someone you care for through your job or someone apart of your family, they are humans just like the rest of us and deserve a happy, healthy life.

Animal Therapy for Children with Cerebral Palsy

Cerebral Palsy is a condition marked by impaired muscle coordination and/or other disabilities, typically caused by damage to the brain before or at birth. Effective therapy for this condition is having direct contact with animals such horses, dolphins and dogs. Hippotherapy engages the patient in activities on horseback as part of a specific cerebral palsy treatment. When a horse’s movement is transferred to a patient, it produces a beneficial sensory and motor input. The gait and stride of the horse provides numerous benefits. Studies show it improves muscle tone, posture, balance, coordination and motor development. Organizations offer hippotherapy as proper treatment for cerebral palsy and other disabilities and may be covered by insurance. There may also be a local camp near your area that offers daily or weekly therapy.

Horse

Caninetherapy is the direct contact of cerebral palsy patients with dogs. Although it is not a cure, therapy with a dog is a wonderful rehabilitation.
Patients may give the dog commands or encourage the dog with treats, which helps to improve coordination. These dogs are properly trained for specific situations and can improve the daily life of someone with cerebral palsy. There are service animal foundations online that may be able to provide a dog to cerebral palsy patients. Dolphins are also used for therapy, however, horses and dogs are most likely easier to access. Dolphins are highly intelligent animals and they can detect a child’s deficiency. This recognition allows the child to form a bond with the dolphin resulting developmental progress.

Dolphin

Animal therapy using horses, dogs, or dolphins has been used for more than 25 years and continuously show great results in patients with cerebral palsy.

What Causes Cerebral Palsy – Conditions Before Birth

Cerebral Palsy is caused by an abnormality or disruption in brain development, usually before a child is born. Factors that may lead to problems with brain development include:

  • Maternal infections that can affect the developing fetus. These types of infections include syphilis, hepatitis, HIV and parvovirus.
  • Lack of oxygen to the brain related to difficult labor or delivery.
  • Traumatic brain injury to an infant from an accident.
  • Fetal stroke, a disruption of blood supply to a developing baby’s brain. Fetal stroke can be caused by cardiac disorders, dehydration, and blood disorders.
  • Random mutations in genes that control brain development.
  • Infant infections that cause inflammation in the brain.

Baby

There are certain health issues during pregnancy that could lead to the cause of cerebral palsy. They include:

  • Chickenpox, a contagious viral infection. It can be prevented with a vaccine.
  • Toxoplasmosis, a parasitic infection caused by a parasite in contaminated feces of infected cats. This is why pregnant women are told not to clean a cat’s litter box.
  • Syphillis, a sexually transmitted disease.
  • Measles, a viral infection that can be prevented with a vaccine.
  • Cytomegalovirus (CMV), a common virus that causes flu-like symptoms. CMV is spread through body fluids like blood, saliva and urine.
  • Exposure to toxins can increase the risk of birth defects. Toxins include lead, lithium, mercury, and alcohol.

Baby

You can lessen the risk of your child being diagnosed with cerebral palsy by doing the following:

  • Make sure you are vaccinated.
  • Seek early and continuous prenatal care.
  • Practice good child safety.

Behavioral Therapy for Children with Cerebral Palsy

Children with cerebral palsy may received specialized therapy programs from therapists in a clinic, hospital or school. These programs help determine prognosis or need for treatment and also improve daily life function. Behavioral therapy can greatly improve numerous factors in children including developing friendships, managing emotions, reducing anxiety, treating depression and maintaining focus. The results of therapy also benefit the parents and surrounding family members. The financial cost and exhaustion that results from having a child with a disability, may cause strain on relationships and therapy can help the parents in these situations.

Sidewalk Chalk

Emotional behaviors, social and behavioral skills are developing in a child’s early life. For someone with cerebral palsy, it is important to begin a therapy regimen as soon as possible so that these skills can be developed as the child grows. Specific therapy may differ from child to child and the main focus may range from expressing emotions to problem identification. Therapy will need to be altered to fit the different stages of the child’s life. As they grow into adulthood, the focus is no longer about socialization or emotional processes but more about independence and self-care. Behavioral therapy can help empower, focus and affect life-changing circumstances.

Therapy

How do you know if your child needs behavioral therapy? Signs to look for:

  • aggression
  • anger
  • depression
  • loss of appetite
  • isolation
  • moodiness
  • low academic performance
  • anxiety

Behavioral therapy techniques may be administered by a licensed professional counselor, family therapist, pyschotherapists, and psychiatrists. It is important to feel comfortable and trust your provider. For a child with cerebral palsy, behavioral therapy can allow them to form social relationships, dream about the future, and be happy in everyday life.